Silicon Valley Down Syndrome Network


Local Resources

svDSnet Discussion Group

 It is a private list for family members of individuals with Down syndrome.  Please note that this forum is for discussion among parents and caretakers only. Though most members reside in the Silicon Valley/Bay Area of CA, all are welcome regardless of their location or DS group affiliations.

Parents of Adult Children with Developmental Disabilities (PACDD)

PACDD is a support group under PHP and they meet monthly on the 3rd Monday for a daytime meeting from 11am -12:30 pm at PHP. For more information, see the PHP Calendar. They welcome discussion of any and all topics of interest to the group..

Down Syndrome Connection of Bay Area (DSCBA) 

Nonprofit organization with an office in Danville and satellite program locations throughout the greater Bay Area, including the Peninsula. DSCBA’s mission is to empower, inspire, and support people with Down syndrome, their families, and the community that serves them, while fostering awareness and acceptance in all areas of life. DSCBA provides education support for families, classes and programs for people with Down syndrome from infancy through adulthood, an Alternative and Augmentative Communication (AAC) and print lending library, support groups, special events, and more.

Parents Helping Parents

Parents Helping Parents supports, educates, and inspires families and the community to build bright futures for youth and adults with special needs. The office has library, and you can also access to their E-Learning Library at their website. The PHP E-Learning Library includes videos, podcasts, and e-packets on a wide variety of topics to help families caring for loved one with special needs. They are assembled in one place to make if easier to find the resources you need. PHP's staff receive calls from families with children from infancy through their child's adulthood into their 50's and 60's.

Center for Down Syndrome at Lucile Packard Children’s Hospital

The Center for Down Syndrome at Stanford Children’s Health helps each child with Down syndrome reach his or her full potential and function as independently as possible in all aspects of school and family life. Stanford Children's is one of the few children’s hospitals in the nation to offer these much-needed services to children.

Charlie's Clinic (aka Down Syndrome Clinic)

The Down Syndrome Clinic at UCSF Benioff Children’s Hospital in Oakland offers comprehensive, multidisciplinary visits aimed at gathering a “whole picture” of your child.

Each visit with Dr. Noemi Spinazzi, a physician experienced in the care of children with Down syndrome, includes a thorough review of the child’s medical history, with a focus on the American Academy of Pediatrics guidelines.

National Resources

Down Syndrome Clinic to You (DSC2U)
DSC2U, available in English and Spanish, is an alternative way for families to get up-to-date, personalized health and wellness information for their loved one with Down syndrome. DSC2U is an online Down Syndrome Clinic that can be access in the comfort of your home. Through DSC2U families will be asked to:

  • Identify current symptoms
  • Share past or current medical issues or behavior diagnoses
  • Share recent blood work or diagnostic testing
  • Optional questions on nutrition, education, therapies, life skills and community resources are also asked

Responses will be analyzed by a computer, based on state-of-the-art guidelines designed by national Down syndrome experts. The caregiver instantly receives two personalized​ documents, one for themselves and one to share with their primary healthcare provider. The documents provide customized suggestions that are tailored to their loved one’s specific needs.

SVDSN offers  a discount code of $49 to SVDSN members.  For more information on DSC2U or the discount coce, e-mail to

National Down Syndrome Society
The mission of the National Down Syndrome Society is to the national advocate for the value, acceptance and inclusion of people with Down syndrome. 

National Down Syndrome Congress
The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. 

Down Syndrome Affiliates In Action 
The mission of Down Syndrome Affiliates In Action is to support and advance the growth and service capabilities of the local and regional Down syndrome organizations we serve, to be the conduit of value-driven training, programs, best practices and support for our members. DSAIA's purpose continues to be to serve our affiliates through collaboration, resource sharing, and networking.

World Down Syndrome Day
A global awareness day which has been officially observed by the United Nations since 2012. Each year the voice of people with Down syndrome, and those who live and work with them, grows louder.

Our Community Partners

Family photographer with 15 years experience as an Aide with special needs kiddos!
Supporting the SVDSN Taiko program
Programs for individuals with Down syndrome and their peers and reaches new families through The Congratulations Project.

Our Fiscal agent 

Silicon Valley Down Syndrome Network

 SVDSN is a program of Valley Health Foundation who is a 501(c)3 non-profit organization. 2400 Clove Drive, San Jose CA 95128

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