svDSnet Discussion Group
It is a private list for family members of individuals with Down syndrome. Please note that this forum is for discussion among parents and caretakers only. Though most members reside in the Silicon Valley/Bay Area of CA, all are welcome regardless of their location or DS group affiliations.
Parents of Adult Children with Developmental Disabilities (PACDD)
PACDD is a support group under PHP and they meet monthly on the 3rd Monday for a daytime meeting from 11am -12:30 pm at PHP. For more information, see the PHP Calendar. They welcome discussion of any and all topics of interest to the group..
Down Syndrome Connection of Bay Area (DSBCA)
Nonprofit organization with an office in Danville and satellite program locations throughout the greater Bay Area, including the Peninsula. DSCBA’s mission is to empower, inspire, and support people with Down syndrome, their families, and the community that serves them, while fostering awareness and acceptance in all areas of life. DSCBA provides education support for families, classes and programs for people with Down syndrome from infancy through adulthood, an Alternative and Augmentative Communication (AAC) and print lending library, support groups, special events, and more.
Parents Helping Parents supports, educates, and inspires families and the community to build bright futures for youth and adults with special needs. The office has library, and you can also access to their E-Learning Library at their website. The PHP E-Learning Library includes videos, podcasts, and e-packets on a wide variety of topics to help families caring for loved one with special needs. They are assembled in one place to make if easier to find the resources you need. PHP's staff receive calls from families with children from infancy through their child's adulthood into their 50's and 60's.
Center for Down Syndrome at Lucile Packard Children’s Hospital
The Center for Down Syndrome at Stanford Children’s Health helps each child with Down syndrome reach his or her full potential and function as independently as possible in all aspects of school and family life. Stanford Children's is one of the few children’s hospitals in the nation to offer these much-needed services to children.
Charlie's Clinic (aka Down Syndrome Clinic)
The Down Syndrome Clinic at UCSF Benioff Children’s Hospital in Oakland offers comprehensive, multidisciplinary visits aimed at gathering a “whole picture” of your child.
Each visit with Dr. Noemi Spinazzi, a physician experienced in the care of children with Down syndrome, includes a thorough review of the child’s medical history, with a focus on the American Academy of Pediatrics guidelines.
National Down Syndrome Society
National Down Syndrome Congress
Down Syndrome Affiliates In Action
World Down Syndrome Day