It is a private list for family members of individuals with Down syndrome. Please note that this forum is for discussion among parents and caretakers only. Though most members reside in the Silicon Valley/Bay Area of CA, all are welcome regardless of their location or DS group affiliations.
PACDD is a support group under PHP and they meet monthly on the 3rd Monday for a daytime meeting from 11am -12:30 pm at PHP. For more information, see the PHP Calendar. They welcome discussion of any and all topics of interest to the group..
Nonprofit organization with an office in Danville and satellite program locations throughout the greater Bay Area, including the Peninsula. DSCBA’s mission is to empower, inspire, and support people with Down syndrome, their families, and the community that serves them, while fostering awareness and acceptance in all areas of life. DSCBA provides education support for families, classes and programs for people with Down syndrome from infancy through adulthood, an Alternative and Augmentative Communication (AAC) and print lending library, support groups, special events, and more.
Parents Helping Parents supports, educates, and inspires families and the community to build bright futures for youth and adults with special needs. The office has library, and you can also access to their E-Learning Library at their website. The PHP E-Learning Library includes videos, podcasts, and e-packets on a wide variety of topics to help families caring for loved one with special needs. They are assembled in one place to make if easier to find the resources you need. PHP's staff receive calls from families with children from infancy through their child's adulthood into their 50's and 60's.
The Center for Down Syndrome at Stanford Children’s Health helps each child with Down syndrome reach his or her full potential and function as independently as possible in all aspects of school and family life. Stanford Children's is one of the few children’s hospitals in the nation to offer these much-needed services to children.
The Down Syndrome Clinic at UCSF Benioff Children’s Hospital in Oakland offers comprehensive, multidisciplinary visits aimed at gathering a “whole picture” of your child.
Each visit with Dr. Noemi Spinazzi, a physician experienced in the care of children with Down syndrome, includes a thorough review of the child’s medical history, with a focus on the American Academy of Pediatrics guidelines.
Down Syndrome Clinic to You (DSC2U)
Responses will be analyzed by a computer, based on state-of-the-art guidelines designed by national Down syndrome experts. The caregiver instantly receives two personalized documents, one for themselves and one to share with their primary healthcare provider. The documents provide customized suggestions that are tailored to their loved one’s specific needs.
SVDSN offers a discount code of $49 to SVDSN members. For more information on DSC2U or the discount coce, e-mail to email@example.com.
National Down Syndrome Society
National Down Syndrome Congress
Down Syndrome Affiliates In Action
World Down Syndrome Day